Many of you may know that actor Morgan Freeman suffers from fibromyalgia, although from his words his pain seems to be more localized to the left side of his body injured in a bad car accident and hasn’t gone full body yet. That doesn’t mean his symptoms don’t cause havoc full body. It’s just my guess. Anyway, I stumbled upon this article where Freeman discusses his fibromyalgia pain and says that marijuana is the only thing that provides him with pain relief. He says it’s benefits are enough that it should be legalized nationwide. It’s an interesting article and a quick read so I thought I’d share it.
We all have bad days where keeping a positive outlook is impossible. Where we feel like we’ve been hit by a tractor trailer or run over by a train. We react to the weather and can predict it better than weatherpeople can. I like this blog post by Seeking Equilibrium about the average daily pain we all become accustomed to living with and the off-the-charts, please-make-it-stop pain that makes us crawl in bed and pray for sleep until the flare is over.
I love these graphics. Sometimes the best way to understand a bunch of statistics and data is visually. I know I’m a visual learner. The only thing I don’t like about these graphics is that the statistic on how many women have fibromyalgia should be how many people. Men get fibromyalgia too. This is not just a “woman’s disease.”
I recently read Chronic Fatigue Syndrome and Fibromyalgia: From F.I.N.E. (Frustrated, Irritated, Nauseated, Exhausted) to Feeling Better. This is a good book for the newly diagnosed and a good refresher for those who have had Chronic Fatigue Syndrome and/or Fibromyalgia for a while. This book is very upbeat. It makes both diseases seem less daunting. It is similar to a short textbook in that it covers a wide range of topics relating to both diseases as well as focusing on how to help you feel better. The authors of this book — Nancy Fowler and Lisa Ball — describe both diseases, but especially fibromyalgia I think, as “The Thief.” Fibromyalgia steals much from us and changes much in our lives. I think their name for this invisible disease is very apt.
The book aims to educate the reader about his/her disease and to help he/she to cope with the all of the symptoms and changes these diseases force on us. The authors discuss a wide range of topics — from how CFS and fibromyalgia manifest physically to how they affect people mentally and emotionally. This is a good, positive book. I think the way it is most helpful is that each chapter is on a different topic relating to both diseases. You can look at the table of contents and identify the chapters that are most relevant to you and just read those. This is a good thing for us as “fibro fog” often keeps us from being able to focus for more than a short period of time on something detailed like a book. Fibromyalgia and all the medications we have to take to cope with it impair our ability to focus. I believe the authors understood this and set their book up to very reader friendly.
I read much of this book but two chapters resonated the most with me: Nutrition and Psychological Aspects of these diseases. This book is the first place I have seen a detailed list of nutritional concerns and suggestions specifically for sufferers of fibromyalgia and/or CFS. The nutrition chapter was my favorite by far and it had really good suggestions in it that are easy to apply in your daily life. They are simple suggestions to help you feel better, not daunting life changes that require lots of energy and effort.
Here are some of the book’s suggestions from the nutrition and psychological chapters that I jotted down to keep in mind for myself.
- Proteins (meat, poultry, fish, tofu and cottage cheese) will ease carb cravings, give you added energy and aid in weight loss.
- Omega-3 fatty acids have anti-inflammatory properties. Fish oil supplements are a good idea for sufferers of fibromyalgia and CFS.
- Drinking lots of water MUST. Water hydrates cells and flushes toxins out of the body.
- Don’t drink carbonated beverages. Sugar brings an initial energy spike that soon fades, causing a roller coaster effect. Each carbonated drink as 12-14 tsp. of sugar and can lead to yeast problems.
- Small amounts of dark chocolate are good for you. Most chocolate candy is high in fat and has a small amount of caffeine. Stay away from these and caffeine in general.
- Stay away from MSG. It can cause headaches, dizziness, and chest pain.
- Beauty products can contain allergens (gluten, for example). (I recommend Neutrogena makeup products as they are gluten free and very safe.)
- Look for and avoid Aspartame. It’s usually in diet/sugar-free foods.
- Steaming preserves more of the “good stuff” in foods than boiling.
- Don’t eat too many carbs.
- The 5 stages of grief apply to fibromyalgia: Denial, Anger, Bargaining, Depression, Acceptance.
- We move through these stages but eventually we have to accept that these diseases are part of our lives and move on with our life. Anger, depression, and self-pity all help pain to flourish. There is a huge emotional component to fibromyalgia. These types of feelings help feed our pain.
- Once you accept this, then you can start to control your life and body again. Then the healing process can truly begin. You won’t be on a constant emotional roller coaster anymore. You can find yourself again and be you again.
I recommend reading Chronic Fatigue Syndrome and Fibromyalgia: From F.I.N.E. (Frustrated, Irritated, Nauseated, Exhausted) to Feeling Better. When reading it, keep in mind that the authors are big believers in the power of positive thinking and the power of faith. Your views on these topics may not be the same as theirs, but the authors still provide really good information in this book. If they get too much into the positive thinking and faith side of things, just skip that part and move onto the next section. Despite this minor flaw, this book is still a very helpful resource for those suffering from fibromyalgia and/or CFS.
“Victory is always possible for the person who refuses to stop fighting.”
Maybe if we just keep fighting, and work every day to get a little bit better, one day our fibromyalgia/chornic pain will just go away. Or someone will develop a drug that reduces our symptoms. What a victory that would be!
Check this out. There’s an app called “Manage My Pain” that can help us track our symptoms. You can even run reports on the app and send it to people. Maybe it will help us track the good days and bad days and our triggers.
Read the agreement/conditions text carefully though. I got the Lite version since it’s free, but it talks about the app creator using our data as “aggregate data” to track how the app is working. I assume that is more like which features to we use and how often are they used. It also says if you send the reports to people, they may capture your info as well as any names/emails of who you send it to. I don’t know what they’d do with it, but read it carefully and decide if that’s okay by you. I agreed because I wanted to play with the app and see if it’s helpful to me. I’ve been thinking of late that I need to keep a symptom journal, but I’m always bad about remembering to do daily entries. I think I am more likely to keep up with it daily in an electronic format I can use on my phone and hopefully on my Kindle Fire too. I don’t think I’ll be sending anyone reports since they may capture that data though. I just wanted to warn everyone of that buried fine print.
I’m going to play with this app and will update you on what I think of it.
Here’s more detailed info on the app: http://www.scenarhealthcanada.com/manage-my-pain/.
I’m doing my Thankful Thursdays writing challenge a bit different today. I wanted to share this poem with you that Fibrozine was nice enough to post.