Quote of the Day – Perseverance

“Perseverance is not a long race; it is many short races one after the other.”
–Walter Elliot

Fibromyalgia isn’t a sprint. It’s a marathon. Each day is its own separate trial where we battle the pain of our invisible disease. We don’t aim so much to beat it but to make it through the day. Make it through to get to the next battle. But we fibro sufferers are fighters. Maybe stubborn too. I know I am. I treat each day as a fresh start. How good or bad yesterday was pain wise doesn’t matter. Today is a new chance at a good day. And if it is a good day, I make the most of it. If it’s a bad day, I still try to make the most of it. I keep fighting. I persevere. Maybe one day they will have a cure. I hope so. Then our perseverance will really have paid off!

50th Anniversary Celebration of the March on Washington

I really enjoyed watching President Obama speak yesterday during the celebrations marking the 50th anniversary of the March on Washington and Martin Luther King, Jr.’s famous “I have a Dream” speech. I enjoyed it in part because the first African American President stood there, where MLK once stood, to mark the anniversary of such an important moment in the civil rights movement. That alone is a powerful representation of just how far we’ve come. I enjoyed President Obama’s speech because it was a celebration of everyone who is a fighter — whether it be someone who fights for civil liberties or someone — like me — who fights every day against the tide of pain in my own body. His speech celebrated the fighter in all of us, but resonated especially with the fibro fighter in me. There were two parts of his speech that I liked the most and I have not seen them anywhere in the media as pundits favorite excerpts from the President’s speech. They do not speak to policy issues, the civil rights movement, current affairs, or anything else likely to catch the attention of the 24-hour news networks eye these days. They speak to something in the human spirit that lets us keep going even in the face of never ending chronic pain, as we sufferers chronic illnesses face. That part of our selves that said “I will not quit” or “I won’t let this beat me.” That let’s us never give up. That lets us keep putting on foot in front of the other and marching forward no matter what we face or how much pain each step causes us. I hope you enjoy these two quotes as much I as do.

MLK Obama speech

His speech celebrated the fighter in all of us, but resonated especially with the fibro fighter in me.

Obama quote 2a

Researchers find main source of chronic fibromyalgia pain in blood vessels

I just came across this article and had to share it immediately! Finally! Some real hope for a cure for this awful, invisible disease! Finally, some real proof that this is not all in our heads that surely will convince everyone in the medical community what we’ve all be shouting at them for ages. This made my week and it’s only Monday! Things can only go better from here!

 

Fibromyalgia Mystery Finally Solved!

Researchers Find Main Source of Pain in Blood Vessels

Researchers have found the main source of pain in Fibromyalgia patients, and contrary to what many believe, it does not stem from the brain. The findings mark the end of a decades-old mystery about the disease, which many doctors believed was conjured in patients’ imaginations. The mystery of Fibromyalgia has left millions of sufferers searching for hope in pain medications. Up until recently, many physicians thought that the disease was “imaginary” or psychological, but scientists have now revealed that the main source of pain stems from a most unlikely place- excess blood vessels in the hand.

The discovery may lead to new treatments and perhaps even a total cure in the future, bringing relief to as many as 5 million Americans thought to have the disease. To solve the Fibromyalgia mystery, researchers zeroed in on the skin from the hand of one patient who had a lack of the sensory nerve fibers, causing a reduced reaction to pain. They then took skin samples from the hands of Fibromyalgia patients and were surprised to find an extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunts.

Body map

Up until this point scientists had thought that these fibers were only responsible for regulating blood flow, and did not play any role in pain sensation, but now they’ve discovered that there is a direct link between these nerves and the widespread body pain that Fibromyalgia sufferers feel.

The breakthrough also could solve the lingering question of why many sufferers have extremely painful hands as well as other “tender points” throughout the body, and why cold weather seems to aggravate the symptoms. In addition to feeling widespread deep tissue pain, many Fibromyalgia patients also suffer from debilitating fatigue.

Neuroscientist Dr. Frank L. Rice explained: “We previously thought that these nerve endings were only involved in regulating blood flow at a subconscious level, yet here we had evidences that the blood vessel endings could also contribute to our conscious sense of touch… and also pain,” Rice said. “This mismanaged blood flow could be the source of muscular pain and achiness, and the sense of fatigue which are thought to be due to a build-up of lactic acid and low levels of inflammation fibromyalgia patients. This, in turn, could contribute to the hyperactivity in the brain.”

Current treatments for the disease have not brought complete relief to the millions of sufferers. Therapies include narcotic pain medicines; anti-seizure drugs, anti-depressants and even simple advice such as “get more sleep and exercise regularly.” Now that the cause of Fibromyalgia has been pinpointed, patients are looking forward to an eventual cure. Other expressed frustration about how much they had suffered already:

“When are they ever going to figure out that things are never “all in your head?” said one commenter. “Whenever something doesn’t fit in their tiny little understanding, they belittle the patient and tell them they are crazy. People have suffered through this since they were invented. Prescribing SSRIs for everything is not the answer any more than a lobotomy or hysterectomy was.”

The announcement has the potential to unlock better future treatments and undoubtedly has patients all over the world rejoicing that the mystery of Fibromyalgia has finally been solved.

By: Rebecca Savastio, from The Guardian

Human Barometer Meme

I wanted to share this funny meme with everyone. Thank you Google for giving me this funny pic which sums up how I’ve felt the last few days. The rain finally came last night and it brought some relief to my pain, but I’m still having a bad pain day. The rain is supposed to be here non-stop through Wednesday, if you can believe the weathermen. Happy Monday everyone!

human barometer

Quote of the Day – Blessings

A friend had this quote posted on Facebook. I really like it. I’ve been going through a rough spot and this quote reminds me of the silver linings I keep looking for amidst the chaos.

“Our real blessings often appear to us in the shape of pains, losses and disappointments, but let us have patience and we soon shall see them in their proper figures.”
– Joseph Addison

A Little Zen for Today

A little bit of zen for today courtesy of my yoga teacher. I have to remind myself to be in the moment and to breathe, both of which help me manage my fibromyalgia pain.

Look into this moment. You never know what will come next.

You may anticipate but you cannot control it.

Enjoy. Enjoy this moment.

And this one. Breathe!

Relieve Chronic Pain By De-Stressing, Study Says

Relieve Chronic Pain By De-Stressing, Study Says

Destress Pain Management
Living with chronic pain can be truly stressful, but a new study contributes to growing research that managing stress may help reduce discomfort as well. Doctors from the University of Montreal found an association between the intensity of the pain experienced by chronic pain patients and their reported stress levels.

In the small study of just 24 participants, 16 of whom had chronic pain and 18 of whom were healthy control subjects, researchers found that patients who had a smaller hippocampus were more likely to also have higher cortisol levels. And higher levels of the stress hormone, in turn, contribute to increased reported pain scores on a scale of intensity.

“Our study shows that a small hippocampal volume is associated with higher cortisol levels, which lead to increased vulnerability to pain and could increase the risk of developing pain chronicity,” lead author Étienne Vachon-Presseau said in a statement.

Vachon-Presseau and colleagues measured cortisol levels in saliva samples supplied by all study participants. They then asked them to report pain levels, measured hippocampus size using fMRI and tracked response to pain stimuli using another fMRI.

The fMRI tests revealed that subjects with the smallest hippocampus sizes by volume were also more likely to have a greater response to pain in an area of the brain that’s linked to anticipatory anxiety. Subsequently, analysis showed that those patients were also more likely to have higher levels of cortisol.

Previous research has also shown an association between stress response and chronic pain sufferers. Now, many chronic pain specialists recommend a de-stressing practice like meditation to help ease pain response. The researchers hope their study will help support that treatment.
that treatment.

Posted: 03/03/2013 on Huffingtonpost.com

Eight nutritional supplements you should be taking

Eight nutritional supplements you should be taking – an interesting article on small things we can do to help ourselves feel better. I take a lot of these but need more “super foods.”

via Eight nutritional supplements you should be taking.

The it’s 5 o’clock somewhere experimentation

I wanted to share this article about a new study that finds drinking alcohol reduces fibromyalgia symptoms. It’s a very humourous look at this study and I enjoyed reading it.

The It’s 5 o’clock Somewhere Experimentation by Seeking Equilibrium