We make a living by what we get, but we make a life by what we give! –Winston Churchill
I’ve always loved chocolate and now I have an excuse to eat more!
I’m feeling very thankful for another good day today and felt this was appropriate. It’s a traditional Celtic prayer.
May God grant you always…
A sunbeam to warm you,
A moonbeam to charm you,
A sheltering angel, so nothing can harm you.
Life is like a ten-speed bicycle. Most of us have gears we never use.
I stumbled upon this amazing article on Morgan Freeman and wanted to share it. I didn’t know that he has fibromyalgia due to a bad car accident 4 years ago. He can’t really use his left arm anymore and that’s where the pain is the worst for him. His outlook on life and fibromyalgia is just amazing. He’s a complex, contradictory person that we can learn a lot from. He’s a wise man living in pain just like us.
My favorite part of this article is:
“I’m very concerned about longevity. I don’t want to die because I’m stressing over bullshit. There’s lots of shit to do, so when I have a chance to do less, to do nothing, that’s what I do.” He says something else, low and guttural, and once again, I cannot hear him. He grabs his left arm, winces through what appears a supreme flash of pain.
I did an aquatic therapy session on Saturday that included my first experience with hypnosis. I’m not sure if I will be able to describe what I experienced on Saturday. I’ve never experienced anything like it before in my life. Since then, my pain has dramatically reduced. It’s like the pain has receded back to my head. I have a headache and my neck hurts but my body feels loose and nearly pain free. I’m a 2 or a 3 on the pain scale the last couple of days instead of starting at 5 and going up as high as 10 every day. At the moment, I’m at a 1 which to me is nearly pain free. I don’t know what the transformation was I went through on Saturday. I don’t know how long this feeling will last. I don’t know anything other than I am extremely, totally and completely thankful for this reprieve from my pain. I’m going to ride this wave as far as it takes me. I’m going to take it one step at a time and try to hold this feeling of lightness that has come over me as close to me for as long as I can. I feel like I should celebrate this. I also feel like I should cry tears of gladness. My mind is blown by the last few days. I just hope and pray (something I haven’t done in a while) that this feeling lasts, that this reprieve from pain lasts as long as possible.
I just had to share this feeling with my online support community. I hope to be able to share more about what I’ve experienced and try to put together some suggestions that might help others based on my experience. But for now, my mind is blown and I have a lot of journaling ahead of me before I’m able to share any of this better. So please forgive me if I drop out of the blogosphere for a few days. I’m not going anywhere, I’ve just got a lot of thinking and processing to do.
Soft hugs for everyone.
Repetitive Activity & Fibro
You know that using the same muscle groups over and over causes pain to build up rapidly in these areas. Ideally, you need to take lots of rest breaks, although this is seldom a feasible option. Once you have experienced this, it’s just a reality of living with fibromyalgia, and you learn to adapt. You are not lazy, nor are you exaggerating your pain response to repetitive activity. But how do you get others to understand what it feels like to live in your fibro body?
A new study by a Canadian team helps substantiate this escalating pain experience.* It also documents that movement-related pain is more severe for people with fibromyalgia compared to patients with chronic low back pain. And better yet, these differences between fibro and low back pain are not related to depression or fear of movement.
The repetitive task study required patients to lift 18 canisters off a table in front of them (just hold it for a second, then place it back down). The canisters were waist high and arranged in three rows. Those in the front row could be lifted without reaching or bending forward. Lifting the canisters in the second and third rows required additional stretching and strain on the arms and back when reaching for them. With each successive canister lift, the subjects rated their pain level and how heavy they perceived the canister to be (some were filled with more sand than others but they all looked identical).
Fibromyalgia patients reported more intense pain than the back pain patients after lifting the sixth through 18th canister. As the number of canisters lifted increased, so did the pain caused by the repetitive activity, and more so for the fibro group of patients. These differences were not due to lifting the canisters longer or faster, as both patient groups performed the lifting task with the same speed.